ILNews

Inspiration through loss

Back to TopCommentsE-mailPrintBookmark and Share

Anita Day has learned a lot about melanoma since 2002. Back then, she didn’t know that the disease kills one person every hour. But when her father and a family friend died of melanoma in the same year, she began searching for answers. And she hasn’t stopped since.

carmichael-michelle-mug.jpg Carmichael

Day is one of many people who – inspired by a personal tragedy – has formed a non-profit organization that honors the memory of someone lost. At least three such charities have roots in Indiana’s legal community.

Raising awareness

Kate Carmichael’s heart stopped beating before she was born. Her parents, attorneys Michelle and Kepten Carmichael, were distraught – they had gone to the hospital expecting Michelle to deliver a healthy baby girl.

“Most people don’t even know what stillbirth is,” Michelle said. “I didn’t either, until it happened to me.”

Doctors had detected no problems with the pregnancy – the second for the Carmichaels, whose daughter was 20-months old when Kate died. In her hospital room, Michelle cradled Kate in her arms, wondering what had gone wrong. She still wonders today.

The Carmichaels were surprised to learn that few records or data existed about stillbirth. Their frustration at the lack of information is what motivated them to start the Kate Carmichael Stillbirth Program, or Kate Cares. The organization aims to help parents understand and cope with stillbirth and, through the support of Indiana University Health, has begun collecting statistics about stillbirth so that others may someday have the answers the Carmichaels never will.

Day – a founder of Outrun the Sun – was frustrated when she learned how few treatments existed for melanoma. She said a lack of public awareness about this potentially deadly, yet preventable, cancer may be why more treatments are not available. She, along with her sister and cofounder Jonna Kane MacDougall, were determined to raise funds for melanoma research after losing their father and a family friend to the disease.

“Once you have awareness, then you can have education, and once you educate, then people understand the magnitude of the situation; once they understand the magnitude of the situation, then support and funding follows,” Day said.

Raising awareness was one of the goals Vivian and attorney John Maley had in mind when they founded the Joseph Maley Foundation, named in honor of their son, who died at the age of 18.

“Joseph, our oldest son, had a myriad of disabilities and four younger brothers who lived a quote-unquote normal life,” Vivian said. “To them, there was nothing out of the ordinary. And yet, they saw it wasn’t that way when we would go places. They knew that somehow, they were looked at differently.”

The children recognized a need to educate the public.

“It was Tony who said 11 years ago, ‘Mom we’ve got to do something about teaching people about disabilities,’” Vivian recalled.

What they do

Day’s husband was a good friend of another Outrun the Sun cofounder, Jenny Patton Sarno, whose husband, Gary Patton, died of melanoma in 2002 at age 38. The same disease killed Day’s and MacDougall’s father, John Busse, just 11 days earlier.

“As our two families kind of went down this path together, and we shared our challenges and frustrations, it became very apparent that melanoma needed to have some strong force behind it,” Day said. She said that the founders realized that hosting a large community event would bring attention to the cause. They had seen how the Susan G. Komen Foundation had grown from a small grassroots charity to a global leader in breast cancer research after starting its annual race, Susan G. Komen for the Cure.

outrun-the-sun-back-15col.jpg A runner wears a sign in honor of her sister at 2010’s Outrun the Sun. The annual race raises funds for melanoma research. (Photo courtesy Outrun The Sun)

“We started with a simple idea for having a run/walk – it was at least a way to get awareness out,” Day said. The first year, they expected maybe 200 or 300 entrants in the race, and they were stunned, she said, that 1,600 people participated, which amounted to about $50,000 raised for melanoma research. This year, the race will be on June 4 at Fort Benjamin Harrison in Indianapolis.

The Carmichaels have raised $280,000 for stillbirth research, creating a fund through the Riley Children’s Foundation in 2003 that accepted donations in Kate’s name. The donations allowed them to launch the non-profit organization in 2006.

Michelle said that doctors may handle stillbirth cases differently in different parts of the state. Especially at smaller hospitals, the technology and resources may not be sufficient to conduct a thorough autopsy and take tissue samples that could help determine a child’s cause of death. Sometimes, she said, a baby born still may be whisked away by staff before the mother even sees the child, which Michelle thinks is a disservice to any family. She is thankful that her husband had the strength and foresight to take photos of Kate, so that they can remember her. She keeps the photos in a large white scrapbook, filled with cards and letters from friends.

The Carmichaels received a $70,000 grant from the Clarian Health Values Fund for the production of DVD’s that demystify stillbirth for medical professionals and families. They hope that the DVD’s will help spread the word about the need for stillbirth research; currently, the Kate Cares program is in place in all Indiana University hospitals, and St. Francis Hospital.

“We will help any hospital that wants to jump on board,” Michelle said.

The Joseph Maley Foundation, Vivian said, aims to teach children of all abilities about the importance of helping others.

“Because we have all kinds of children in our life, we really didn’t want to serve or concentrate on one group of children,” she said. But the foundation does work with young people to teach them how difficult life can be for someone who has limited physical or mental abilities.

charities“We have a curriculum, pre-K all the way through eighth grade – by the time they reach eighth grade, they take on a disability,” she said. “They know which disability they’re going to take on, but we try to keep it random. We try to get across that your life can change at any moment.”

Students who participate in the program may – as their final project – spend a day in a wheelchair, or they may have to figure out how to cope with some other physical or mental limitation. Afterward, students participate in a type of exit interview and are asked to share their views about the experience.

The Maley Foundation also travels to schools to produce puppet shows that teach children about disabilities. The shows – along with much of the public service work the foundation engages in – are performed by children. The foundation also hosts an annual 5K Run/Walk/Roll, which will be July 9 this year.

Future plans

Day said that because of funds raised from the annual race, they’ve been able to support researchers who are working toward treating melanoma. Outrun the Sun has begun exploring how to work with other cities to set up annual races, and it is working with USA Track & Field to reach its more than 100,000 members – people who are at higher risk of melanoma due to their exposure to the sun.

Vivian said that she wants to expand their disability awareness programs into more schools and make school officials aware that they can ask for components of the program that suit their needs.

Michelle hopes that Kate Cares may eventually become fully endowed so it can be self-sustaining. With little revenue, the organization can afford only one part-time employee. Kate Cares relies heavily on the doctors and nurses at IU Health who volunteer their time to help put together a clearinghouse of stillbirth data.

But equally important to her is that people begin to change their view of stillbirth.

“It’s dealing with babies, and it’s dealing with death, and people aren’t comfortable talking about it,” she said. “That’s not typically how life is supposed to work.”•
 

ADVERTISEMENT

  • Outrun the Sun
    I was diagnosed with malignant melanoma in December 2010. My cancer was located on my lower left calf. I have been looking forward to this year's event since I came home from my surgery. It is a marker of not only how far I've come in my recovery but also how far we need to go to raise awareness of this potentially fatal cancer. Kudos to Anita & Jenny!

Post a comment to this story

COMMENTS POLICY
We reserve the right to remove any post that we feel is obscene, profane, vulgar, racist, sexually explicit, abusive, or hateful.
 
You are legally responsible for what you post and your anonymity is not guaranteed.
 
Posts that insult, defame, threaten, harass or abuse other readers or people mentioned in Indiana Lawyer editorial content are also subject to removal. Please respect the privacy of individuals and refrain from posting personal information.
 
No solicitations, spamming or advertisements are allowed. Readers may post links to other informational websites that are relevant to the topic at hand, but please do not link to objectionable material.
 
We may remove messages that are unrelated to the topic, encourage illegal activity, use all capital letters or are unreadable.
 

Messages that are flagged by readers as objectionable will be reviewed and may or may not be removed. Please do not flag a post simply because you disagree with it.

Sponsored by
ADVERTISEMENT
Subscribe to Indiana Lawyer
  1. What is the one thing the Hoosier legal status quo hates more than a whistleblower? A lawyer whistleblower taking on the system man to man. That must never be rewarded, must always, always, always be punished, lest the whole rotten tree be felled.

  2. I want to post this to keep this tread alive and hope more of David's former clients might come forward. In my case, this coward of a man represented me from June 2014 for a couple of months before I fired him. I knew something was wrong when he blatantly lied about what he had advised me in my contentious and unfortunate divorce trial. His impact on the proceedings cast a very long shadow and continues to impact me after a lengthy 19 month divorce. I would join a class action suit.

  3. The dispute in LB Indiana regarding lake front property rights is typical of most beach communities along our Great Lakes. Simply put, communication to non owners when visiting the lakefront would be beneficial. The Great Lakes are designated navigational waters (including shorelines). The high-water mark signifies the area one is able to navigate. This means you can walk, run, skip, etc. along the shores. You can't however loiter, camp, sunbath in front of someones property. Informational signs may be helpful to owners and visitors. Our Great Lakes are a treasure that should be enjoyed by all. PS We should all be concerned that the Long Beach, Indiana community is on septic systems.

  4. Dear Fan, let me help you correct the title to your post. "ACLU is [Left] most of the time" will render it accurate. Just google it if you doubt that I am, err, "right" about this: "By the mid-1930s, Roger Nash Baldwin had carved out a well-established reputation as America’s foremost civil libertarian. He was, at the same time, one of the nation’s leading figures in left-of-center circles. Founder and long time director of the American Civil Liberties Union, Baldwin was a firm Popular Fronter who believed that forces on the left side of the political spectrum should unite to ward off the threat posed by right-wing aggressors and to advance progressive causes. Baldwin’s expansive civil liberties perspective, coupled with his determined belief in the need for sweeping socioeconomic change, sometimes resulted in contradictory and controversial pronouncements. That made him something of a lightning rod for those who painted the ACLU with a red brush." http://www.harvardsquarelibrary.org/biographies/roger-baldwin-2/ "[George Soros underwrites the ACLU' which It supports open borders, has rushed to the defense of suspected terrorists and their abettors, and appointed former New Left terrorist Bernardine Dohrn to its Advisory Board." http://www.discoverthenetworks.org/viewSubCategory.asp?id=1237 "The creation of non-profit law firms ushered in an era of progressive public interest firms modeled after already established like the National Association for the Advancement of Colored People ("NAACP") and the American Civil Liberties Union ("ACLU") to advance progressive causes from the environmental protection to consumer advocacy." https://en.wikipedia.org/wiki/Cause_lawyering

  5. Mr. Foltz: Your comment that the ACLU is "one of the most wicked and evil organizations in existence today" clearly shows you have no real understanding of what the ACLU does for Americans. The fact that the state is paying out so much in legal fees to the ACLU is clear evidence the ACLU is doing something right, defending all of us from laws that are unconstitutional. The ACLU is the single largest advocacy group for the US Constitution. Every single citizen of the United States owes some level of debt to the ACLU for defending our rights.

ADVERTISEMENT